I learned something new yesterday, which made me realize that I misidentified someone in a picture from the Mud Buddies at Burning Rock blog.
I said that Bob and Bobby were following 3 Mud Buddies, when, in fact they were following two Mud Buddies. The one leading the way, in the yellow helmet, is actually from PWD Off Road, which is a organization based out of Ohio that also provides riding opportunities for people with disabilities. Check out their website: http://www.pwdoffroad.org/, or like them on Facebook.
Darin, from PWD, in the yellow helmet, leading Bob and Bobby.
Yesterday, Darin shared my blog posting to his PWD Off Road Facebook page. I have to share one of the comments that were made:
I am the President of Mountaineer Off-Road the host of the Moonshine Run and the upcoming Thrills in the Hills Off-Road Jamboree at Burning Rock, I would love to have Bobby as one of our guest of honor on stage with the Blackwater Outlaws during our Thrills in the Hills event. I would like to offer you all free passes to the event and let him meet Brian Fisher in person and of course trail riding with a guide...
Bobby as a "guest of honor," these are honestly words that I never thought that I would hear, or read. Bob and I started laughing last night and had a hard time stopping. The reason...well, right now, Bobby is in a stage where he doesn't want to leave his clothes on. All day long I have been following him around making him dress. We were picturing him on stage, taking his clothes off-and I mean commando, the full monty!! Sorry, Blackwater Outlaws, you are being upstaged my a naked boy onstage!!
I also have to concess, that I had no idea who Brian Fisher was. I found the flier for the event on the Burning Rock website and found out the Brian is the host and executive producer of Fisher's ATV World on the Outdoor Channel. In Bobby's World, we watch a lot of Elmo, Blue's Clues, Jacks Big Music Show...I didn't even realize that there was an Outdoor Channel. Who knows, this may be a show that Bobby really likes to watch, we will have to check it out.
We aren't able to go to this event, but it looks like a great time. You should check out the Mountaineer Off Road website: http://www.mountaineeroffroad.com/
I feel like it is worth repeating...we met a lot of EXTREMELY nice, wonderful people at Burning Rock. I am so glad that Bob planned this day.
Welcome to a glimpse into the world of my 12 year old son, Bobby, who happens to be on the more severe end of the autism spectrum. We spend a great deal of time playing outside, spending time with his peers, and venturing out into the community...all while I take way too many pictures. You can also find me on Facebook at... www.facebook.com/bobbysworldwithautism
Bobby's World
Wednesday, April 4, 2012
Sunday, April 1, 2012
Riding with the Mud Buddies at Burning Rock Outdoor Adventure Park
For those who don't know, April is Autism Awareness Month, so I wanted to Light It Up Blue Today. I'm sure that I'll be blogging more about this later, but today's post is all about our day trip yesterday.
Bob searched online to try and find something fun to do with Bobby, and low and behold he found a group in West Virginia called Mud Buddies. They are a non-profit who takes people with disabilities for guided tours on 4 wheelers and ATV's on different trails throughout the state. Bob emailed them and they said that they were going to be at Burning Rock Outdoor Adventure Park in Sophia, WV on March 30 and to come on down and ride with them. Plan made. I didn't have anything to do with it. For those who don't know what it is like to take a child with autism (especially with Bobby's level of functioning) somewhere new and not be the one to make the plans and know every detail of what was available there, where we were going, who the people were....well, I just had to step back and let Daddy have this one.
We got up at 5 am. I packed a cooler, snack bag, changes of clothes, and a few other things for Bobby. Bob loaded up the car (he loaded up the Rhino on Friday night). I woke up Bobby and said, "Lets go for a ride in the car." No more beautiful words have ever been heard by Bobby Smith. So, he got right up, went potty, got dressed, took allergy medicine and got right into the car.
Bob and I were excited to see this sign. We made it!! No problems with Bobby or with the trailer. Starting off to a good day!!
Bob went into the general store and bought the trail passes. I took Bobby to the bathroom, which are the two green doors in the front and the two green doors on the side. Nice facilities with showers inside (since there are cabin rentals just yards away). So far, I really like what I see. A nice, clean place. Now, time to unload the Rhino and get this ride underway!
Not sure how/where Bob met up with the Mud Buddies, but he found them...
Mike and Susie of the Mud Buddies Foundation (I didn't take this picture, I snatched it from the Burning Rock Outdoor Adventure Park Facebook page), but it was taken right before they took off with Bob and Bobby.
3 Mud Buddies 4-wheelers on the left and Bob and Bobby in the Rhino on the right. Taking off with the Mud Buddies leading the way...
Ready to ride the over 100 miles of trails!!! Have fun!!
Bob could have taken Bobby for a ride all by himself. There are no rules that you can't take someone for a ride with a disability without a guide, but it just would not be safe to take Bobby alone. What if Bob had a accident? Bobby wouldn't flag down another rider or call 911, he would instead, run off into the woods. Bob had enough to worry about on the ride....making sure Bobby kept his seat belt on, his helmet lid down, kept the door closed, kept his arms in the Rhino. When you have that much going on in your head, trying to follow a map and remember where you are is much, much more difficult. That is where the guides come in handy. Guess what, they still got lost. You can get a guide from Burning Rock, you have to pay of course, and it is just plain old easier when you have someone that knows about and understands the unique situation of a person with a disability.
What did I do while they rode for over 3 hours? Well, thank you for asking! I shopped in the little general store and bought the boys each a t-shirt. That took about 5 minutes of my time. I sat out on one of the picnic tables in front of the general store and bathrooms and read a book. One of the owners of Burning Rock visited with me for a while as did a couple of other staff from Burning Rock. But the rest of the time, I read a book. Nothing to cook or clean, no one to watch after. I just got to sit for 3 hours and read. I am reading "Carly's Voice" which I am sure that I will have to blog about soon. Yes, it is about autism. I also took pictures. Watched a couple of people go down the zip-line, which scares the &*#% out of me. (Bob at the end of the ride kept trying to egg me to ride the zip-line. No amount of anything would ever get me on there. 60 mph through the air. No thank you.)
They came back dirtier than I even anticipated. So glad that we brought changes of clothes. Bobby would not sit in the Rhino long enough for me to get a picture of the full effect of dirtiness.
Bob was freezing because they were soaked through. Bobby didn't care that much. He even took his shoes off during the ride.
I got out the change of clothes for Bobby and he was like, awesome, dry clothes and took off his wet, dirty ones right there for me to change him. He then pulled on me. While Bob put the Rhino away, I took Bobby for a walk. Really Bobby pulled me, straight to the bathrooms. He went right it and went about his business. Poor kid had to pee. Bob finally made it over to the bathrooms to shower off and change his clothes and Bobby once again started pulling me. This time towards to food truck...
You can't tell from this picture, but the food truck was in the middle of a field with a couple of tables around. Bobby was beelining towards the food truck. Me thinking..."Oh Bobby, I know that you won't eat barbeque. Lets go to the car and get some of your snacks and then we will stop and eat on the way home." Bobby ran over to one of the tables and was sitting down beside someone to eat the french fries that were on his plate. Oh great, the truck has french fries (I know that he must have smelled them, we have never eaten from a food truck). He had difficulty (understatement) waiting for his french fries, but once he got them, he took them over to the table, sat down with the Mud Buddies crew and started eating. Bob and I laughing about how EXTREMELY well Bobby is sitting to eat. I wish I would have had my camera, but it was back at the car. So, I don't have any pics with the Mud Buddies afterwards or Bobby sitting and eating. After Bobby ate, we loaded back up into the car...
Bob searched online to try and find something fun to do with Bobby, and low and behold he found a group in West Virginia called Mud Buddies. They are a non-profit who takes people with disabilities for guided tours on 4 wheelers and ATV's on different trails throughout the state. Bob emailed them and they said that they were going to be at Burning Rock Outdoor Adventure Park in Sophia, WV on March 30 and to come on down and ride with them. Plan made. I didn't have anything to do with it. For those who don't know what it is like to take a child with autism (especially with Bobby's level of functioning) somewhere new and not be the one to make the plans and know every detail of what was available there, where we were going, who the people were....well, I just had to step back and let Daddy have this one.
We got up at 5 am. I packed a cooler, snack bag, changes of clothes, and a few other things for Bobby. Bob loaded up the car (he loaded up the Rhino on Friday night). I woke up Bobby and said, "Lets go for a ride in the car." No more beautiful words have ever been heard by Bobby Smith. So, he got right up, went potty, got dressed, took allergy medicine and got right into the car.
Hillbilly parade float (Friday night)
We only made one stop on the ride down to Sophia (which is right outside of Beckley). We stopped at a Go-Mart to get gas. I took Bobby in to use the bathroom and to buy something small so that we could get change for the toll-road. When we went into the bathroom, Bobby said "swimming." In my head I was thinking, "swimming!!!! We are at a convience store using the bathroom, pulling the Rhino behind us and you want to go swimming!!! What in the world makes you think that we are going swimming. I can't even believe it...swimming!!!!" Then I looked around. All 4 walls in the bathroom were tiled in white, glossy tiles with a band of pool blue tiles about 3/4 of the way up. The floor was tiled in the small 1 inch white tiles with black grout and it slanted to the middle where there was a drain. A clean, white bathroom. So I said, "yes Bobby, you're right. I does look like a bathroom that would be at a swimming pool!!" This boy notices EVERYTHING!!!! If I had gone in their myself, I would have not been able to tell you what color the walls were, let alone that they had tile or dry wall, etc. I definitely do NOT notice the world as fully as Bobby.
Bob and I were excited to see this sign. We made it!! No problems with Bobby or with the trailer. Starting off to a good day!!
Bob went into the general store and bought the trail passes. I took Bobby to the bathroom, which are the two green doors in the front and the two green doors on the side. Nice facilities with showers inside (since there are cabin rentals just yards away). So far, I really like what I see. A nice, clean place. Now, time to unload the Rhino and get this ride underway!
Not sure how/where Bob met up with the Mud Buddies, but he found them...
Mike and Susie of the Mud Buddies Foundation (I didn't take this picture, I snatched it from the Burning Rock Outdoor Adventure Park Facebook page), but it was taken right before they took off with Bob and Bobby.
3 Mud Buddies 4-wheelers on the left and Bob and Bobby in the Rhino on the right. Taking off with the Mud Buddies leading the way...
Ready to ride the over 100 miles of trails!!! Have fun!!
Bob could have taken Bobby for a ride all by himself. There are no rules that you can't take someone for a ride with a disability without a guide, but it just would not be safe to take Bobby alone. What if Bob had a accident? Bobby wouldn't flag down another rider or call 911, he would instead, run off into the woods. Bob had enough to worry about on the ride....making sure Bobby kept his seat belt on, his helmet lid down, kept the door closed, kept his arms in the Rhino. When you have that much going on in your head, trying to follow a map and remember where you are is much, much more difficult. That is where the guides come in handy. Guess what, they still got lost. You can get a guide from Burning Rock, you have to pay of course, and it is just plain old easier when you have someone that knows about and understands the unique situation of a person with a disability.
What did I do while they rode for over 3 hours? Well, thank you for asking! I shopped in the little general store and bought the boys each a t-shirt. That took about 5 minutes of my time. I sat out on one of the picnic tables in front of the general store and bathrooms and read a book. One of the owners of Burning Rock visited with me for a while as did a couple of other staff from Burning Rock. But the rest of the time, I read a book. Nothing to cook or clean, no one to watch after. I just got to sit for 3 hours and read. I am reading "Carly's Voice" which I am sure that I will have to blog about soon. Yes, it is about autism. I also took pictures. Watched a couple of people go down the zip-line, which scares the &*#% out of me. (Bob at the end of the ride kept trying to egg me to ride the zip-line. No amount of anything would ever get me on there. 60 mph through the air. No thank you.)
They came back dirtier than I even anticipated. So glad that we brought changes of clothes. Bobby would not sit in the Rhino long enough for me to get a picture of the full effect of dirtiness.
Bob was freezing because they were soaked through. Bobby didn't care that much. He even took his shoes off during the ride.
I got out the change of clothes for Bobby and he was like, awesome, dry clothes and took off his wet, dirty ones right there for me to change him. He then pulled on me. While Bob put the Rhino away, I took Bobby for a walk. Really Bobby pulled me, straight to the bathrooms. He went right it and went about his business. Poor kid had to pee. Bob finally made it over to the bathrooms to shower off and change his clothes and Bobby once again started pulling me. This time towards to food truck...
You can't tell from this picture, but the food truck was in the middle of a field with a couple of tables around. Bobby was beelining towards the food truck. Me thinking..."Oh Bobby, I know that you won't eat barbeque. Lets go to the car and get some of your snacks and then we will stop and eat on the way home." Bobby ran over to one of the tables and was sitting down beside someone to eat the french fries that were on his plate. Oh great, the truck has french fries (I know that he must have smelled them, we have never eaten from a food truck). He had difficulty (understatement) waiting for his french fries, but once he got them, he took them over to the table, sat down with the Mud Buddies crew and started eating. Bob and I laughing about how EXTREMELY well Bobby is sitting to eat. I wish I would have had my camera, but it was back at the car. So, I don't have any pics with the Mud Buddies afterwards or Bobby sitting and eating. After Bobby ate, we loaded back up into the car...
He decided to have some snack afterall. I wish that you could see how dirty his face still was. Bobby got a little fussy on the ride close to Flatwoods, so we stopped. While Bob got gas, I walked Bobby over to the Outlet Mall to walk around on the sidewalks. Once again, he dragged me...right into the bathroom. He had to pee. (He knows how to say, "pee potty" and has used it in the past. Didn't use it once today). He peed, we walked, he got right back into the car and rode home without any issues.
Daddy planned an outstanding day!!!!!!
If you have a motorcycle, 4 wheeler, ATV, I totally recommend that you check out Burning Rock Outdoor Adventure Park. A great, family friendly place to ride. Saw many children on their 4 wheelers and little Rhino's. Met some very friendly people. Very clean, well manicured establishment. Burning Rock does rent things to ride and do have guides. Not sure the cost. Check out their website.
http://www.burningrockwv.com/
Also, if you are interested in riding with the Mud Buddies, check out their website. They have different events all over the state, yesterday they just happened to be at Burning Rock. They are supposed to send me the list of their events if anyone is interested. They also have a 4 seater to take a couple of people on a ride with them.
http://www.mudbuddiesfoundation.com/
"Trail Therapy" rocks, thanks Daddy for such a great day!!!
Daddy planned an outstanding day!!!!!!
If you have a motorcycle, 4 wheeler, ATV, I totally recommend that you check out Burning Rock Outdoor Adventure Park. A great, family friendly place to ride. Saw many children on their 4 wheelers and little Rhino's. Met some very friendly people. Very clean, well manicured establishment. Burning Rock does rent things to ride and do have guides. Not sure the cost. Check out their website.
http://www.burningrockwv.com/
Also, if you are interested in riding with the Mud Buddies, check out their website. They have different events all over the state, yesterday they just happened to be at Burning Rock. They are supposed to send me the list of their events if anyone is interested. They also have a 4 seater to take a couple of people on a ride with them.
http://www.mudbuddiesfoundation.com/
"Trail Therapy" rocks, thanks Daddy for such a great day!!!
Tuesday, March 27, 2012
After School Fun
Bobby, I am so sorry that you mom is such a picture junky. Thanks for letting me take your picture over and over and over and over....
I got my camera out yesterday after school. Bobby got in his new sandbox and played on his playground. He actually climbed on his dome! Had to wear pants, summer left and the 50 degree temps were back, he still preferred to take his shoes off. Oh well.
I got my camera out yesterday after school. Bobby got in his new sandbox and played on his playground. He actually climbed on his dome! Had to wear pants, summer left and the 50 degree temps were back, he still preferred to take his shoes off. Oh well.
Sunday, March 25, 2012
Weekend in Pictures
Not much going on this weekend. Bobby has been suffering from allergies. Grouchy, sneezy, grouchy, coughing, grouchy, grouchy and did I mention grouchy!!
"Glad Mom and Dad got the table with a hole in it!!"
"Glad Mom and Dad got the table with a hole in it!!"
Get him Zoi!! Lick his face!!!!
"Where's my pilot???"
Dressed himself.
Working a puzzle book that Grandma Carolyn got him for Christmas. I think he likes it!
Playing under the crabapple tree.
Tuesday, March 20, 2012
Winter Is Finally Over...
however, I'm not sure that it really ever began. If you need a snow shovel or a sled, now is the time. The stores have plenty and they are clearanced to get them out of the door.
The past few days have been very busy. Bob spent all weekend at Grandma Carolyn's house digging a big hole in the basement to put in a sump pump. Bobby and I went on Saturday to spend the day, but Bobby was not happy. He wanted to be outside, not spend the day inside at Grandma's. Bobby and I skipped the work party on Sunday and stayed home and played outside all day long. The book fair is this week at school and it is the one event that I volunteer my time. I drop Bobby off at the back door at school and drive around to the front, go in, work in the library all day, get Bobby from his classroom, go home and go outside for the rest of the day. I am not prepared to be outside all evening until dark, we usually don't do this until summer, not end of winter/beginning of spring.
The temperature on my car thermometer was 83 degrees when we left school today. Bobby has been non-stop saying "swimming" over and over and over. He just doesn't understand that even though it is in the 80s, it is not time to open the swimming pool. So, I made an executive decision, and stopped to buy an inflatable pool to use for now. Talk about a happy kid!!!!
He circled the pool a few times before he finally decided to get in.
Once he got in, he sat down and stayed for about 45 minutes before he got out. Cold water has met it's match with Bobby Smith!!
The little bitty pool in front of the big, "fun" pool!
Bobby spent a lot of time pouring water over his head, great practice for hair washing.
The past few days have been very busy. Bob spent all weekend at Grandma Carolyn's house digging a big hole in the basement to put in a sump pump. Bobby and I went on Saturday to spend the day, but Bobby was not happy. He wanted to be outside, not spend the day inside at Grandma's. Bobby and I skipped the work party on Sunday and stayed home and played outside all day long. The book fair is this week at school and it is the one event that I volunteer my time. I drop Bobby off at the back door at school and drive around to the front, go in, work in the library all day, get Bobby from his classroom, go home and go outside for the rest of the day. I am not prepared to be outside all evening until dark, we usually don't do this until summer, not end of winter/beginning of spring.
The temperature on my car thermometer was 83 degrees when we left school today. Bobby has been non-stop saying "swimming" over and over and over. He just doesn't understand that even though it is in the 80s, it is not time to open the swimming pool. So, I made an executive decision, and stopped to buy an inflatable pool to use for now. Talk about a happy kid!!!!
He circled the pool a few times before he finally decided to get in.
Once he got in, he sat down and stayed for about 45 minutes before he got out. Cold water has met it's match with Bobby Smith!!
The little bitty pool in front of the big, "fun" pool!
Bobby spent a lot of time pouring water over his head, great practice for hair washing.
I'm a happy boy!!
He went inside and ate some dinner, then back into the pool for another 40 minutes. If the weather forecast holds true, looks like the pool will get much more use this week. Two more days of book fair duty then home to swim. Whoo Hoo!!!
I took pictures of our trees blooming while Bobby swam. Since it is the first day of spring, I have to share at least one...
Happy First Day of Spring!
Saturday, March 17, 2012
Bobby's Day Off
The Mon County school calendar has multiple out of school days added in during March and April this year. These days off were to be taken away to make-up all of the snow days. Who knew that we were going to have the warmest winter ever and that record high temps were going to be broken. So guess what kids, you get a whole bunch of three day weekends in the next couple of months. No big deal since I don't work, but sure this is causing problems for some other families.
Bobby's behavior on his day off was awesome!!! It was as if he was thanking us for not making him go to school today. Thank the BOE Bobby, not Mommy and Daddy (but we RELLY appreciate it).
Bobby got to work first thing in the morning...
The entire rest of the day was spent outside. Daddy had the day off too, so Smith family fun day was on!!!
Let's get to work, we have alot to wash!! Rhino, lawn mower, cars....
Oh heck with it, I think that I'll just wash my feet...
Now I have to wash my shoes, I can't put clean feet into dirty shoes!!
Now the water is too dirty, I have no other choice but to dump it out...
Wait, where is the water going? I'd better follow the trail...
What is this feeling? Mommy calls it "clean" and I don't like it! Let me see what I can do about this...
Awwwwww!! That's better!
Mommy keeps saying that my white shirt will never be the same. I sure wish that Daddy would let me cut the grass...
I know that Daddy touches something down here, surely I can figure this out...
I give up!! The rest of the day was filled with rides in the Rhino, blowing bubbles, jumping in the trampoline with the neighbor kids, playing on the swingset and just plain old outdoor fun. If only the pool was opened............
Bobby's behavior on his day off was awesome!!! It was as if he was thanking us for not making him go to school today. Thank the BOE Bobby, not Mommy and Daddy (but we RELLY appreciate it).
Bobby got to work first thing in the morning...
The entire rest of the day was spent outside. Daddy had the day off too, so Smith family fun day was on!!!
Let's get to work, we have alot to wash!! Rhino, lawn mower, cars....
Oh heck with it, I think that I'll just wash my feet...
Now I have to wash my shoes, I can't put clean feet into dirty shoes!!
Now the water is too dirty, I have no other choice but to dump it out...
Wait, where is the water going? I'd better follow the trail...
What is this feeling? Mommy calls it "clean" and I don't like it! Let me see what I can do about this...
Awwwwww!! That's better!
Mommy keeps saying that my white shirt will never be the same. I sure wish that Daddy would let me cut the grass...
I know that Daddy touches something down here, surely I can figure this out...
I give up!! The rest of the day was filled with rides in the Rhino, blowing bubbles, jumping in the trampoline with the neighbor kids, playing on the swingset and just plain old outdoor fun. If only the pool was opened............
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