Bobby's World

Bobby's World

Saturday, May 28, 2016

Dear 5th Graders

You may or may not know, but April is Autism Awareness Month.  I typically like to do a small awareness project on Facebook or in my blog, but this year I decided to do a project for the group of kids, who for the past 7 years, have been a part of Bobby's everyday school life.  I discussed the idea with Bobby's principal and one of the 5th grade teachers and they both agreed it was do-able.

The longer the idea rolled around in my head, it changed a little from my original plan.  I ordered some Autism Awareness trinkets from Oriental Trading.....pencils, pens, silicon bracelets and the like. A treat may or may not have been part of the plan too, but don't tell on me because sending sweets into school is taboo!!!  LOL!!!  I made up a gift bag for each student in the 5th grade of Bobby's elementary school, not just his home room, but all 3 total classes since they all have been part of his school life.

I sat down to write a letter to go with each classroom's gift pack and it wrote itself quickly as a thank you letter to these awesome kids.  I've decided to share the letter because Bobby and his class went through their promotion ceremony this week, even through they have a few more days of school to make up snow days from this past winter.  But mainly, I decided to share because of the totally unexpected reaction to the letter from the kids.
Bobby's autism teacher, Ms Kim, helping Bobby receive his promotion certificate.
Dear Skyview 5th Graders,

April is Autism Awareness Month.  In honor of the occasion, we wanted to share some autism awareness items with you.  We realize that you have more awareness of the symptoms and issues that can be a part of autism than most, because of your daily contact with Bobby and any other classmates that also have an autism diagnosis.  

Most of all we wanted to take a minute to say THANK YOU for the way that you have treated Bobby.  There are stories on the internet all of the time about special needs kids being bullied at school, however, Bobby has received the opposite treatment from you, his Skyview classmates.

Over his years at Skyview, we have received reports from his teachers and aides about you guys helping Bobby in specials, especially phys. ed. and music.  We have been texted pictures of classmates helping Bobby play basketball and hockey, holding his hand and helping him play at recess, and helping him in the cafeteria.  We have heard stories about classmates taking turns on the see saw with Bobby at recess and pushing him on the swings before he figured out how to swing by himself.  

I have witnessed his classmates yelling "Hi" and "Bye" to Bobby when he left school early or had to come in late. Last year, those of you in Mrs. Talbert's class, even risked getting in trouble for being loud in the halls when you all yelled "Happy Birthday Bobby" down the hall to him as we left early for his afternoon therapy appointment.  

However, when the entire class voted to include Bobby in the this year's Christmas program, even with his loud noises, you made us so incredibly happy and proud.  If only the rest of the world had as much compassion and understanding of those with autism as this group of 5th graders!!!

Thank you to Bobby's fellow classmates who have come up and said hi to him at the mall, grocery store, Wal-Mart and rail trail.  Thank you to those of you who have introduced yourself to me while I was volunteering during book fairs or in the office picking up Bobby in the afternoon and proudly told me that you were in class with him. 

Our greatest hope is that you continue to watch out for your special needs classmates as you venture on to middle school next year.

If any of you have any questions about Bobby or autism, please feel free to ask Mrs. Wasserman or your teachers.  If they don't have the answer they know how to get a hold of us and we will get the answer to you!

Sincerely Proud Skyview Parents,
Mr. and Mrs. Smith
Bobby and his buddy, Sonny along with their autism teacher and aides.

The ceremony is now over and I would like to add to their thank you letter.....
Thank you for not even noticing or being bothered in any way by Bobby's loud noises that he made during the ceremony!!!  

It just showed that Bobby is part of their lives, just like a family member, and these noises are just part of the package that they have accepted....no big deal!!  Oh my goodness, how I love these kids!
Bobby and Sonny with the women who rule their lives!!!!

The 5th grade teachers read the letter and passed out the goodies on April 1, the beginning of Autism Awareness month.  The 5th graders reaction to this was more and greater than any of us would have ever guessed!!  The goodies and gift bags were absolutely secondary.  No one had ever mentioned them, it was all about the letter.  Have I mentioned lately how I love these kids!

Bobby's regular ed homeroom teacher told me that one girl, after the teacher read the letter, said, "wow, it must have been really hard for her to send him to school."  OH MY GOODNESS, I never expected the kids to GET IT, really get it at this age.  Yes, sweetie, it was very hard!!  His teacher posted the letter on the board in the classroom and she said that she has seen each student, at one time or another, go up and reread the letter.  Yes, I love these kids!!  One of the other 5th grade teachers reported that she had never witnessed her class be so quiet as a group as when she was reading the letter aloud to them. 

A few days later, I was asked if I could come in and be interviewed about Bobby by some of the 5th graders for a project.   Turned out the project with an Autism Awareness video that would be posted on the school website for the entire school to view.  A 5th grade student interviewed Ms Kim, Bobby's autism teacher and me about autism.  So the letter turned into an school wide autism awareness project.  Have I told you lately how much I love his school and never want him to leave there!!

Ms Kim reported to me that many people came up to her and said the video was very helpful and that they learned a great deal.  Best possible outcome for autism awareness where I really need it most, with his peers and teachers!!!!
Bobby with his super proud parents!!

The 5th graders stepped up their game even more with Bobby as a result.  It went from random reports of his regular ed classmates being helpful to daily reports!!!  A student, on his own, went over and helped Bobby hit a ball with a bat.  They were in gym class, the boy came over and hand over hand, helped Bobby at his turn at bat.

The gate was open on the playground when his class went out for recess, Bobby saw the opening and went out.  He just wanted to stand there and look in from the other side of the fence.  A girl from his class went out and stood beside him and talked to him until he was ready to come back in.  

Have I mentioned lately how much I love these kids!!

I was sitting in the school office waiting for Bobby to be brought out so that we could leave for his therapy.  A boy walked in, put a paper in the basket and turned to leave.  He looked at me and said, "are you Bobby's mom?"  I smiled and said "yes" and he nodded to me in a cool kid, cocky way with a slight smile on his face. A look that said....you are good people!!
5th grade graduates Sonny and Bobby

My advice to autism parents.....teach their classmates about autism.  As a parent, you know much more about the topic than their regular ed teachers.  The word autism was never taboo in his education.  I jumped into the conversation when Bobby was in the 3rd grade when I made up a presentation about Bobby, with pictures of him doing what he likes to do, and it was shared with the entire 3rd grade.  Instead of being "the weird kid" he is a boy with autism.  
Bobby and Ms. Kim, his autism teacher.  I'm not sure what we are all going to do without each other next year.  Who's going to take it harder.....Bobby, Ms. Kim or me???  

Good luck to the 5th grade class of 2016.  I couldn't me more proud of you!!




Monday, May 23, 2016

12th Birthday Fun

Bobby is 12.  Next year he will be a teenager!!! Doesn't even seem possible.  However, it happened, so we HAD to celebrate!!

He got an early gift last weekend, we were excited, we knew that he was going to love it.  He opened the gift immediately and couldn't wait for Daddy to get it assembled.




Well, that was the last time that he sat on it, once in the garage.  He has zero interest in his new riding toy.  Oh well!!

On his actual birthday, we celebrated at home with a small family party.
Time to blow out the candles!!
We let him have his family gifts instead of waiting for his upcoming party.

He opened them pretty well, however after he would open one, he wanted to go outside and I would prompt him back to open the next one.
New shoes, swim trunks.....ready for summer.
What's in the big bag from Grandma????  A car wash kit of course!!!
Bobby couldn't wait, so we let him go outside and begin washing.  The old bucket was already outside, so he used it.
Last year, one of Bobby's buddies/classmates told everyone that he was going to Bobby's house for his birthday party, causing me to scramble and throw together a party.....which turned out to be a huge success.  I decided to invite the same couple of kids and have similar fun outdoor activities for this year's birthday.

After I invited the guests, the forecast changed from sunny to rainy with thunderstorms.  GREAT!  I went ahead and decorated inside and mentally prepared for a house full of boys!!
When I was planning a menu, Bob said to me, "what is the one food that they will all eat?"  Umm, when you are talking about a group of kids on the spectrum, there is not one food!!!  They are all so picky.  I decided on pizza and french fries and all of the kids were happy.

As soon as the guests arrived, they all sat down to eat because it was lunch time.  Something amazing happened......all of the boys sat down at the kitchen table together and ate.  They sat together wonderfully and got their own seconds!!!!!!!  The adults all ended up sitting in the dining room to eat and left the kids in the kitchen.  I am still in shock.  Of course I had to grab my camera and second amazing thing happened....the ALL looked at the camera!!!!!  Thank you boys!!

After the kids finished eating, the electronics came out.  We let them chill while the adults finished eating.

When everyone was finished eating, we got the kids outside for a silly string battle!!!!!  The pictures speak for themselves.....30 cans of silly sting later..................













Our poor driveway!!!!!!

I bought something else to add to the mess and the boys had no idea what to expect, but they were game for the next activity......confetti canon.......


Since they were already standing in a group, I wanted a group picture and again, they shocked me and I got a super cute one with everyone looking at me, of course I took many to get that one, but I got it!!
 Jacob doesn't realize that Bobby's can of silly string is empty and is prepared for the worst and Bobby doesn't realize that his can is empty.  Sorry bud, the silly string is all gone.
Great picture of this super awesome group of boys!!!!!  Up next??  Airplanes, trampoline jumping, Rhino rides with Bob........just boy fun!
Grandma Carolyn and Aunt Dianna got the airplanes prepared.
OK, this is more impressive if you know where I live, but Michael flew a plane from our house to the side of Rt. 19 at the bottom of our hill!!!!!!  Bob went down on the Rhino to get it and someone from the business across the highway directed him to where it landed!!!  YIKES!!!!!!! The boys were beyond thrilled by this flight!!
Not all of the flights were successful, so even landed in the trees.  These two were right on the job of getting them down.
Joey is a great photobomber!!!!
Bobby had a great time and did a lot of laughing.
Bobby and Sonny playing chase in the trampoline.

After Bobby and Sonny had Rhino rides, Jacob decided to give it a try.
 So proud that he voluntarily got in and went for a short ride!!
 Another airplane stuck in the tree....Joey to the rescue with a rake in hand.


The boys were finally wearing down, so time for some more sugar.......CAKE!!!!
The cute little cake decoration that I got for the cake was way too wide.  So Bob and Mimi decided to hold it for the picture!!!
Bobby wasn't overly interested in opening his gifts, so I let party guests open them.  Score......a Giant Eagle gift card!!!!!!!Yes, the people in our lives KNOW what Bobby likes!!!!  After everyone left, Bobby ripped open a box of magnetic squares that he also received and carried them around all evening and all morning and they even went to the bus stop with us this morning.
The party was perfect!!  The kids all had fun.  The all actually ate.  They all actually played and enjoyed being outside.  Mother Nature cooperated.  NO RAIN THROUGHOUT THE WHOLE PARTY even with thunderstorms forecasted.  No meltdowns, new activities tried.  Party success!! Thanks to all of the guests, Bobby had such a great day!!