Bobby's World

Bobby's World

Monday, December 5, 2016

Sensitive Santa 2016

I had no intention of taking Bobby to Sensitive Santa this year.  He started middle school and it seemed like the perfect time to transition away from this event, he's a big boy now and his typical peer classmates are no longer visiting Santa.  Then, when he woke up Sunday morning at 5:30 am requesting to go to Giant Eagle or Target or to the mall....he woke up ready to go, which happens most mornings.

Fine Bobby, I'll take you to the mall, perfect timing!!  I put him in his every day clothes, no need to dress up since he won't be sitting on Santa's lap, just participating in some of the other fun events and taking a nice long walk.

Before we left the house, I took some annual "in front of the Christmas tree" pictures.  This process is easier if he has a reward, like going to the mall.




He cooperated, now off to the mall we go!!!  We walked a couple of laps around the mall and then I gave in and let him play in the kids play area.  He kept requesting "slide" so why not?  The mall is full of special needs families, they don't care if a big kid is in the play area.


While in the play area, he still kept requesting slide.  Sorry Bobby, that is the slide, it didn't shrink, you grew!!!  You are not going to find anything more thrilling here....you are over 4 years old!! After 5 minutes he was done.  "Come on Bobby, you can ride the train."  Part of the Sensitive Santa fun, the mall train is there giving free rides for the 2 hour event.

Bobby sat in a couple of different cars, but decided that he didn't want to ride the train.  What???? The conductor couldn't even believe that he didn't want to ride.  That's how many times he had taken rides in the past, the conductor knows us!!!  I still can't get over how his likes/dislikes are changing. Instead of riding, he preferred to watch the train go by and wave at them.

 I still can't get over the fact Bobby's hand is up in the air and he is waving at them!!!!!!!!
Not sure what came over me, but I decided to go over and get him a number to go visit with Santa. There was a new Santa this year and why not??  We took some pictures with the mall decorations in the background.

Finally time to get a Santa picture.

They offered to take the picture again because Santa is not looking at the camera.  I said no thanks, made me laugh that Bobby is the one actually looking at the camera!!!

So thankful that these Sensitive Santa events happen all over the country!!  It's awesome to see this group of kids having a fun holiday activity.  They could make ornaments, got a free book or cd, had a area with large blocks to build with and knock over, sensory activities including lots of bubbles being blown and most of all, socialization with our special needs family and friends.

Thursday, December 1, 2016

Can't Believe This Day Has Arrived!!

Immediately after I finished the phone call with the officer from the sheriffs department, tears started rolling down my face, which completely shocked me.  I could not believe that I was crying. I could not stop crying.  Why was I crying now???  After all the sad part of this story was absolutely at the beginning, the day that a deputy from the sheriff's office came to our home, over eight years ago.

I was in such a funk for days after our initial meeting.  Having the police in your home, taking fingerprints and mug shots of your child.  Assisting the officer in getting profile shots and then filling out a form of any identifying marks on your child's body.  Despising the fact that we needed this service and at the same time feeling so blessed that the program exists in our county.  Before the officer left that first day, he fitted Bobby with a Project Lifesaver GPS tracing device that Bobby has worn every day around his ankle for the past eight plus years.
This bracelet was a vital part of Bobby's childhood.  You see, Bobby was a wanderer.  It is such a huge problem in the autism community that wandering is now a medical diagnosis.  They have zero sense of fear and zero impulse control.  On multiple occasions when Bobby was younger, he slipped out of our house undetected.  At this time, our house was the most child proofed home that we could make for him, but even all of those safety measures were not infallible.  He once walked into our neighbors house wearing nothing but his underwear during cold weather, thankfully it was a neighbor's house and not a strangers.

Our biggest scare with Bobby came one day when he was missing in the woods surrounding our house for about 45 minutes.  We were out searching for him, yelling his name and his dad went searching on his 4 wheeler.  After 20 minutes, I ran back to the house and called 911 while I was out of breath.  All I had to do was give them his name, his transmitter number, where he was last seen and what he was wearing.  All of Bobby's information was in their system.  Our address, directions to our house, his picture.  Thankfully Bob found him, a good bit away from our home, while searching on the 4 wheeler.

In the autism community, wandering is a huge issue, with facebook pages so that autism families in affected communities can help get the word out when I child goes missing in their area.  There are postings much more frequently than those outside of the autism community would ever believe. Unfortunately, death of the child due to wandering is way too common of an outcome in these stories, typically by drowning.

Yesterday, I spoke with Bobby's Project Lifesaver officer and told him that we were ready to take Bobby's bracelet off.....Bobby has outgrown his wandering tendency.  I spoke with many people in Bobby's life, most importantly his teacher, and we all agreed.  One of the conversations that I had on this topic was with my BFF and fellow autism mom, Shelly.  Bobby and Sonny pretty much lead the same life anyway and Sonny could have had his removed years ago. she decided too, that it was finally time.
So............TODAY, their Project Lifesaver officer from the sheriff's department is going to school and removing the boys' bracelets!!!  A day that both of our families, eight years ago, would have never imagined would arrive. Think I'll go shed a few more tears, happy tears, that this part of their life is behind them and that Project Lifesaver is there is we need to re-enroll.

Merry Christmas Bobby and Sonny, enjoy your naked ankles!!!!!!!


******UPDATE***************************************************************
Mission completed!!!!  So grateful that his teacher took pictures and texted them to me today,  Of course, I cried a little more!!